ARCVIC

Hi to all,

Respite can be really difficult because its so hard to "switch off" the caring role. Even when my daughter is well and I'm relaxing and enjoying myself, thoughts creep into my mind and I wonder how she is doing, or if she is still well.

I have become much better at managing those thoughts over the past few years. I guess I have become more confident that she is doing OK and that she, or the people around her, can manage any crisis that may arise.

As I sit here and write, I also realise how far we have all come since she became ill. Respite wasn't possible in the early days of her illness. She needed constant care and was at my side at all times. Even having a shower was difficult! Respite for me was a cup of tea before bed at night, but at least that was something I could look forward to.

My daughter has now moved interstate with her partner, and I managed an overseas trip last year, all things that I never dreamed would be possible.